The Idea
To raise loads of money for the Cystic Fibrosis Trust and have lots of fun in the process.
The Plan
To hold a eight hour sponsored Lindy Hop dance marathon in Cambridge early in 2007. You can dance for just 1hour or any number of hours up to the whole eight for the really hardcore dance fans. You don’t have to dance every dance as this is meant to be a fun event not an overly exhausting one! If you only want to do three of four hours then you can spread them out across the eight hours of dancing. The only rule is that their must be someone on the dance floor (actually dancing) at all times.
How to take part
Watch this blog for details of the exact date and venue when they have been confirmed. For more info contact me (an email link is under my complete profile)
What is CF?
-Cystic Fibrosis is the UK's most common life-threatening, inherited disease and affects more than 7500 babies, children and young adults. Symptoms can include poor weight gain, troublesome coughs, repeated chest infections, salty sweat and digective problems.
-Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
- In the UK, 2.3 million people carry the faulty CF gene - 1 in 25 of the population.
- If both parents are carriers of the faulty gene, there is a 1 in 4 chance with every pregnancy
-At present there is no cure for CF, but the fautly gene has been identified and doctors and scientists are working to find ways of repairing or replacing it. One of the main objectives of the CF Trust is to fund this work.
-People with CF are living longer than ever before. Until the 1930s, the life expectancy of a baby with CF was only a few months. Today the average life expectancy for someone with CF is around 31 years.
Why take part or donate to the CF Trust
- By taking part you can help raise money to fund research into new treatments and a hopefully a cure.
- Each week five babies are born with Cystic Fibrosis. Of the people with CF, 50% are under 15 and 70% are under 20
- Each week three young lives are lost to Cystic Fibrosis.
- The Trust funds research aimed at understanding, treating and curing Cystic Fibrosis.
- They also aim to ensure that people with CF receive the best possible care and support in all aspects of their lives.
- The Cystic Fibrosis Trust needs to raise £8 million every year to fund its vital work.
